Grant's Giants Pompe Nonprofit was formed after our son Grant was diagnosed with Infantile Pompe disease.
It is said that the first year after a rare disease diagnosis is the hardest. After that first year we were determined to do something that would make a difference for families affected by this rare disease. Grant's Giants will offer scholarships to pediatric Pompe families to attend the Pediatric Pompe Conference at Duke, financially support advancements in research, advocate for newborn screening, and help with medical expenses for Pompe families.
To serve, educate, advocate, and support the Pompe community both locally and nationally.